Guide to manage last days of life in Parkinson’s disease

28/06/2013 End of Life

Comments Off on Guide to manage last days of life in Parkinson’s disease

Parkinson’s and the last days of life has been developed by NCPC’s Neurological Conditions Group following a survey of Parkinson’s disease experts which expressed concerns about diagnosing dying, excluding reversible causes, withdrawing medications and symptom control. Guidance was developed as a result, led by Dr Mark Lee, Consultant in Palliative Medicine at St Benedict’s Hospice.
Both the End of Life Care Strategy and last year’s Palliative Care Funding Review emphasised the importance of providing end of life care on the basis of people’s needs, whatever condition they have. However there is little guidance available to help teams manage the care of people with neurological conditions in the last days of life.

Parkinson’s is one of the most common neurodegenerative conditions. 9 out of 10 people with Parkinson’s die either in hospital or in care homes, with disproportionately higher numbers dying in care homes (41%) compared to the national average (18.5%). Nearly half (49%) of people with Parkinson’s die in hospital.

The guidance arrives amidst new projections that the number of people living with Parkinson’s in the UK is set to rise by 28% by 2020, from 127,000 to 162,000. This further emphasises the need to get care right for this group, including, when the time comes, access to high quality end of life care.

NCPC hopes the new guidance will help professionals care more confidently for people with Parkinson’s and related conditions in the last days of life.

More information:

http://www.ncpc.org.uk/news/83

Share this:
Email this to someoneShare on FacebookTweet about this on TwitterShare on Google+Share on LinkedInPin on Pinterest

  

  • The Care Certificate Workbook Downloads

    by on 27/03/2015 - 0 Comments

    The Care Certificate Workbook from Skills for Care is a free downloadable resource aimed at supporting the training process and helping employers and their new health and social care workers to cover parts of the Care Certificate. The Care Certificate Workbook has been produced following the piloting of the Care Certificate, which indicated employers would […]

  • Sensible Risk Assessment in Care Settings

    by on 07/11/2013 - 0 Comments

    The Health and Safety Executive (HSE) has published guidance on sensible risk assessment in care settings.  The guidance covers a range of areas such as moving and handling and falls. Click here to view this guidance. Share this:

  • Communicating with people with a learning disability

    by on 16/12/2014 - 0 Comments

    This communicating with people with a learning disability guide from Mencap is designed to provide a brief introduction to communication, and the problems faced by someone with a learning disability. It also contains tips on how you can be a better communicator, and how you can help someone with a learning disability to get their […]

  • Advance Planning for People with Bipolar Disorder Guide

    by on 04/12/2014 - 0 Comments

    This free Advanced Planning for People with Bipolar Disorder guide has been developed by NHS and university partners and is based on extensive research involving people with Bipolar Disorder. We feel it has huge potential to support people with Bipolar Disorder by helping them to retain control as well as protect their welfare, property and […]

  • Social Care TV - Free resource for learning in social care

    by on 13/08/2014 - 0 Comments

    Social Care TV is a large library of videos on social care, covering adults and young people services, it is run by the Social Care Institute for Excellence (SCIE).  It is free to access and focuses on the English care system but can used across the United Kingdom.  All the films on Social Care TV […]